505
San Marin Dr. Bldg. A, Suite 300, Novato, CA 94945
Phone: 415-897-2400
Administration Fax: 415-897-2422
Data Fax: 415-897-2443
Toll-free for Patients: 1-800-232-3773
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Links to Related Sites
American Society of Transplantation - An organization of transplant professionals dedicated to research, education, advocacy and patient care in transplantation. Some information available in Spanish.
Association for the Advancement of Medical Instrumentation - This informative web site helps promote the understanding and beneficial use of medical instrumentation.
Centers for Disease Control and Prevention (CDC) - Has sections on: disease outbreaks and terrorism events; health and safety; publications and products; and data and statistics.
Centers for Medicare and Medicaid Services (CMS) - Provides information about Medicare coverage for ESRD patients and Medi-gap insurance policies. Has an entire section devoted to ESRD which contains Dialysis Facility Compare (see description below), Medicare Prescription information, as well as information about HIPAA.Clinician Outreach and Communication Activity (COCA) - COCA was established by the CDC for the purpose of timely communication of information on disease outbreaks and terrorism events.
Department of Homeland Security - Has a section on preparedness and response to disasters which includes topics such as Training and Technical Assistance, Publications, and Local Resources.
Dialysis Facility Compare - This resource is intended to help dialysis patients easily compare characteristics of medicare-approved dialysis facilities so that they can make an informed decision about where to seek dialysis treatment. It includes facility addresses, types of dialysis offered, and number of dialysis shifts offered after 5 pm. In addition, patients may look at quality measures which include info about: the percent of patients at a facility with a Urea Reduction Ratio (URR) of 65 or greater, percent of patients treated with Epogen® with a hematocrit of 33 or greater, and patient survival information.
End-Stage Renal Disease Network Coordinating Center (NCC) - The NCC provides centralized coordination and support for the ESRD Network Program.
ESRD Information Resource for Medicare - This is a section of the Medicare Web site which is devoted entirely to providers of ESRD services. Included here is the new "ESRD Calculator" which is used for computing the composite payment rate for patients.
FistulaFirst.org - This web site provides comprehensive information and tools about the Fistula First project.
HIPAA Resources for Healthcare Providers - Scroll down the home page to find links to a variety of HIPAA resources.
Home Dialysis Central - Developed by the Medical Education Institute, this site's goal is to educate patients about home dialysis and its benefits. Includes a listing of US dialysis centers that offer home dialysis, descriptions of various types of home dialysis, patient stories, and discussion boards.
Hypertension, Dialysis & Clinical Nephrology (HDCN) - This web site offers web-based learning to anyone on the Internet seeking medical educational opportunities. Access to lectures, symposia, abstracts, and a variety of journal articles are available. The learner must register with the web site to gain access to the material, and must complete a post-test and evaluation to earn educational credit.
Immunization Action Coalition - A non-profit organization providing useful and timely immunization and hepatitis information.Kidney End-of-Life Coalition Web Site - This comprehensive site is intended to promote effective interchange between patients, families, caregivers, payers, and providers in support of integrated patient-centered end-of-life care for chronic kidney disease (CKD) patients.
Kidney School™ - Part of the Life Options web site, Kidney School is a web-based learning center that can be used by both professionals and patients. Kidney School consists of 16 modules addressing a wide range of topics from treatment options to lab tests. Nurses and other health care professionals can earn continuing education credits by going to Kidney School. CE credits can be earned for Modules 1 & 2. Module 1 covers basic information about the causes of chronic kidney disease, and Module 2 presents treatment options.
Life Options Organization - Updated and revised in March of 2005, the new site features an easy-to-navigate home page where visitors can order or download free materials; find kidney disease information; read patient tips and stories; and link to "Kidney School™". The site also offers a downloadable Licensing Agreement which allows users to print and distribute copies of any requested booklet on the site. The Agreement also allows users to "co-brand" the booklets by adding a name, address, and "this copy compliments of _____" in a 3-inch-square box on the lower front or back cover.
MedWatch - As part of the FDA Safety Information and Adverse Event Reporting Program, the MedWatch web site reports medical product safety alerts, recalls, withdrawals, and important labeling changes. MedWatch also allows health care professionals and consumers to report serious problems that they suspect are associated with the drugs and medical devices they prescribe, dispense, or use.
National Institute of Diabetes, Digestive, and Kidney Diseases - The NIDDK web site provides information about many different health topics, current research and clinical trials, advances and initiatives, grant application procedures, and provides many useful links.
National Kidney Foundation - Information about advocacy, support groups, education programs and pamphlets about kidney disease, kidney failure, dialysis and transplant.
Nephron.com - A plethora of information including a listing of closed dialysis units during disasters, links to journal articles, current news stories, a GFR calculator, a food value calculator, patient education articles, and lots more. Highly recommended.
NephroWorld.Com - "The whole world of Nephrology" - Information about kidney disease, dialysis and transplant.
Promoting Excellence in End-of-Life Care is dedicated to long-term changes to improve health care for dying persons and their families. Particularly targeted are specific diseases including End-Stage Renal Disease. This site contains the final report summary that the ESRD Workgroup compiled regarding the need for palliative care in the ESRD population.
Ready.Gov - Created by the Federal government, this site covers all aspects of disaster preparedness and has links to community and state information.
Renalnet.org - This site was created to provide a clearinghouse for information on the cause, treatment, and management of kidney disease and ESRD.
RenalWEB.com - Lots of information about dialysis including: current news, dialysis yellow pages, discussion boards, legislation watch, meetings and conferences, and hundreds of links to other dialysis resources.
RxAssist.org - This site is a compilation of application criteria and forms for use by health care providers applying for free pharmaceuticals for their uninsured patients. Most drug manufacturers offer a limited supply of free prescription medication to eligible patients.
Scientific Registry of Transplant Recipients (SRTR) - The SRTR designs and carries out rigorous scientific analyses of data and disseminates information to the transplant community.
Social Security Administration - Information about Medicare Benefits.
United Network for Organ Sharing (UNOS) - This agency manages the national waiting list for organ transplants, and the web site is undoubtedly the best place to start when looking for transplant information.
United States Renal Data System (USRDS) - A national data system which collects, analyzes, and distributes information about ESRD in the United States.
www.72hours.org - Specifically designed to respond to emergencies in the San Francisco area including earthquakes and tsunamis, this site is also translated into Spanish.
505 San Marin Dr. Bldg. A, Suite 300, Novato, CA 94945
Phone: 415-897-2400
Administration Fax: 415-897-2422
Data Fax: 415-897-2443
Toll-free for Patients: 1-800-232-3773